Readers respond to John Harris’s article on the need to consider disabled people of working age when reforming the care system
I found myself nodding in agreement at John Harris’s worries about his son’s future as he leaves full-time education to enter the world of adult social services (Social care for disabled adults is in as much crisis as support for elderly people – so why is the government silent about it?, 5 October). John’s concerns were shared by my wife and I as our disabled daughter moved from her specialist residential further-education setting 17 years ago.
However, with her gutsy approach and strong financial support by way of 24-hour care from our local council, she is able to say, “I love my life”, and has expressed this in a little book, How I Flourished, published by Lewisham Adult Learning. This despite being quadriplegic, having no speech and being dependent on her personal assistants for all the necessaries of life.
I could wax at length about her wheelchair dancing, the “proper job” she secured with a wonderful charity (the Deptford-based Entelechy Arts), her painting, thirst for maintaining social relationships involving long and tiring overseas travel, and so on. The blunt truth, however, is that we, as her parents, have always needed to be closely involved in managing her care and safety, and for taking up the opportunities to broaden her landscape. We are aware that she has had a much better deal than so many people in adult care institutions.
